On May 20, residents are invited to the Hornets Rugby Club between 1.00pm and 5.30pm to learn more about the rare genetic disorder, which affects the energy production cells in the body.
Not only that, but the event will also feature live music, a children’s DJ, games, food, a raffle draw, and much more. There will also be an auction of several donated items, including tickets to the Goodwood Festival of Speed, a signed Southampton Premiership football, a family pass to the Concorde museum, and a family ticket to Cheddar Gorge, to name a few.
Any money raised will go towards helping Kieran complete his bucket list. The target is £10,000, which could help him to fulfil his dreams.
Speaking on Kieran’s Crowdfunding page, his parents say: “Kieran was born at 26 weeks and has faced many different medical problems along the way. He has recently been diagnosed with mitochondrial disease complex one deficiency. This is a life limiting progressive condition that will affect all of his organs. He currently uses a wheelchair and we have already seen a big decline in his capabilities.
“He is such a happy and cheerful boy and always puts others needs before his own.
“He desperately wants to travel to other countries and we are currently unsure of how long he will be capable of doing this.
“We want to get as many things done with him whilst we can and also make happy memories for his sisters to cherish.”
According to the Lily Foundation, mitochondrial diseases can impact different people in different ways depending on which cells are affected. For instance, a person with the disease could suffer from seizures, fatigue, vision or hearing loss, cognitive disabilities, respiratory problems or poor growth.
Any organ can be affected, including the brain, heart, lungs, gut, liver and skin.
Currently, there is no cure, however supportive therapy is often used to help manage the disease.
For more information and to make your own donation to Kieran’s cause, please visit his Crowdfunding page: Crowdfunding to fund Kieran’s bucket list on JustGiving.
